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overview Carolyn and Matthew Bucksbaum Professor of Clinical Ethics Professor, Departments of Pediatrics, Medicine, Surgery and the College Co-Director, Institute for Translational Medicine Associate Director, MacLean Center for Clinical Medical Ethics University of Chicago My areas of research include: ethical and policy issues in organ transplantation, pediatrics, genetics, and human subjects protections/research ethics. I am currently writing a book on sibling obligations in health care that is funded by the National Library of Medicine. Books Lainie Friedman Ross, Children, Families, and Health Care Decision-Making (Oxford University Press [UK], 1998). Lainie Friedman Ross, Children in Research: Access versus Protection (Oxford University Press [UK], 2006). Robert M Veatch and Lainie F. Ross, Transplantation Ethics, 2nd ed. (Georgetown University Press, 2015). Robert M Veatch and Lainie F Ross, Defining Death: The Case for Choice (Georgetown University Press, 2016) Lainie Friedman Ross and J. Richard Thistlethwaite Jr. The Living Donor as Patient: Theory and Practice (Oxford University Press [US], 2021 in press) AB 1982 Princeton University (School of Public and International Affairs) MD 1986: University of Pennsylvania School of Medicine Residency (1986-1989): Children’s Hospital of Philadelphia (PGY-1 &2) Columbia University (PGY-3) M Phil 1992: Yale University (Philosophy) PhD 1996: Yale University (Philosophy)
One or more keywords matched the following items that are connected to Ross, Lainie
Item TypeName
Concept Child Abuse
Concept Child Abuse, Sexual
Concept Psychology, Child
Concept Attitude of Health Personnel
Concept Attitude to Health
Concept Child
Concept Child Welfare
Concept Child Advocacy
Concept Child, Hospitalized
Concept Child, Preschool
Concept Health Physics
Concept Health Surveys
Concept Delivery of Health Care
Concept Health Facilities
Concept Health Services Needs and Demand
Concept Health Education
Concept Insurance, Health
Concept Health Services Accessibility
Concept Primary Health Care
Concept Health Policy
Concept Patient Acceptance of Health Care
Concept Mother-Child Relations
Concept National Health Programs
Concept Parent-Child Relations
Concept School Health Services
Concept Health Knowledge, Attitudes, Practice
Concept United States Dept. of Health and Human Services
Concept Global Health
Concept Health Care Rationing
Concept Health Behavior
Concept Mental Health
Concept National Institutes of Health (U.S.)
Concept Health Care Costs
Concept Disabled Children
Concept Public Health Administration
Concept Quality Assurance, Health Care
Concept Quality of Health Care
Concept Health Status Disparities
Concept Student Health Services
Concept Adolescent Health Services
Concept Health Care Surveys
Concept Healthcare Disparities
Concept Family Health
Concept Health Personnel
Concept Health Status
Concept Public Health
Concept Adult Children
Academic Article Religious exemptions to the immunization statutes: balancing public health and religious freedom.
Academic Article Should all living donors be treated equally?
Academic Article Pediatricians' attitudes toward expanding newborn screening.
Academic Article Paediatricians' attitudes and practices towards HPV vaccination.
Academic Article Pediatricians are more supportive of the human papillomavirus vaccine than the general public.
Academic Article Fragile X screening: attitudes of genetic health professionals.
Academic Article Pediatricians' attitudes toward resuscitation in children with chronic illnesses.
Academic Article Attitudes of minority patients with end-stage renal disease regarding ABO-incompatible list-paired exchanges.
Academic Article Parental understanding of newborn screening for cystic fibrosis after a negative sweat-test.
Academic Article Sickle cell trait screening in athletes: pediatricians' attitudes and concerns.
Academic Article Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis.
Academic Article Attitudes and beliefs of sports medicine providers to sickle cell trait screening of student athletes.
Academic Article Age should not be considered in the allocation of deceased donor kidneys.
Academic Article Ethics of hematopoietic stem cell transplantation in type 1 diabetes mellitus.
Academic Article Empirical data about women's attitudes towards a hypothetical pediatric biobank.
Academic Article An empirical investigation of physicians' attitudes toward intrasibling kidney donation by minor twins.
Academic Article Policy considerations in designing a fragile X population screening program.
Academic Article A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease.
Academic Article Immunisation against chickenpox.
Academic Article Moral grounding for the participation of children as organ donors.
Academic Article Ethical issues in pediatric trials.
Academic Article Attitudes and practices in postmortem organ procurement.
Academic Article Genetic exceptionalism vs. paradigm shift: lessons from HIV.
Academic Article Adolescent sexuality and public policy: an unrepentant liberal approach.
Academic Article Justice for children: the child as organ donor.
Academic Article Arguments against health care autonomy for minors.
Academic Article Adolescent sexuality and public policy: a liberal response.
Academic Article In defense of the Hopkins Lead Abatement Studies.
Academic Article Predictive genetic testing for conditions that present in childhood.
Academic Article Effect of family history on disclosure patterns of cystic fibrosis carrier status.
Academic Article Responding to the challenge of the children's health act: an introduction to children in research.
Academic Article Why "doctor, if this were your child, what would you do?" deserves an answer.
Academic Article Certificates of confidentiality in research: rationale and usage.
Academic Article Should children and adolescents undergo genetic testing?
Academic Article (Women and) children first: applicable to lifeboats? Applicable to human experimentation?
Academic Article The need for consistency in 407 reviews.
Academic Article Children in medical research: balancing protection and access--has the pendulum swung too far?
Academic Article Do peer guidelines or editorial policies affect the reporting and discussion of race and ethnicity in pediatric research?
Academic Article Consent for clinical research.
Academic Article Health care decisionmaking by children. Is it in their best interest?
Academic Article In defense of a single standard of research risk for all children.
Academic Article Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: implications for policy.
Academic Article Ethical issues in genetic testing of children.
Academic Article Phase I research and the meaning of direct benefit.
Academic Article A compounding of errors: the case of bone marrow donation between non-intimate siblings.
Academic Article The participation of children in nontherapeutic diabetes research in the US.
Academic Article Attitudes of healthcare professionals and parents regarding genetic testing for violent traits in childhood.
Academic Article Parental attitudes and beliefs regarding the genetic testing of children.
Academic Article From genetics to genomics: ethics, policy, and parental decision-making.
Academic Article Newborn screening for cystic fibrosis: a lesson in public health disparities.
Academic Article Disclosing misattributed paternity.
Academic Article Pediatricians' attitudes about screening newborns for infectious diseases.
Academic Article Professional and personal attitudes about access and confidentiality in the genetic testing of children: a pilot study.
Academic Article Are doctors altruistic?
Academic Article Are minority children under- or overrepresented in pediatric research?
Academic Article Lessons to be learned from the 407 process.
Academic Article Newborn screening technology: proceed with caution.
Academic Article Maternal attitudes about sickle cell trait identification in themselves and their infants.
Academic Article Motivation, risk, and benefit in living organ donation: a reply to Aaron Spital.
Academic Article Pediatric research and the federal minimal risk standard.
Academic Article Does familiarity breed acceptance? The influence of policy on physicians' attitudes toward newborn screening programs.
Academic Article Ethical issues in haemophilia.
Academic Article Should a PVS patient be a live organ donor?
Academic Article Primum non nocere: avoiding harm to vulnerable wait list candidates in an indirect kidney exchange.
Academic Article Pediatric bioethics: reintroducing the parents.
Academic Article Informed consent for genetic research involving pleiotropic genes: an empirical study of ApoE research.
Academic Article Growth attenuation by commission and omission may be ethically justifiable in children with profound disabilities.
Academic Article Hypoplastic left heart syndrome: a paradigm case for examining conscientious objection in pediatric practice.
Academic Article When physicians forego the doctor-patient relationship, should they elect to self-prescribe or curbside? An empirical and ethical analysis.
Academic Article Good ethics requires good science: why transplant programs should not disclose misattributed parentage.
Academic Article Disclosing the diagnosis of HIV in pediatrics.
Academic Article Parental attitudes regarding newborn screening of PKU and DMD.
Academic Article American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 2.
Academic Article The ethics of type 1 diabetes prediction and prevention research.
Academic Article Ethical assessment of clinical asthma trials including children subjects.
Academic Article Reactions of pediatricians to refusals of medical treatment for minors.
Academic Article Minors as living solid-organ donors.
Academic Article Ethical issues in identifying and recruiting participants for familial genetic research.
Academic Article Informed consent in pediatric research.
Academic Article Incorporating newborn screening into prenatal care.
Academic Article Clinical and ethical considerations in managing carrier detection.
Academic Article A descriptive and moral evaluation of providing informal medical care to one's own children.
Academic Article Ethics and professionalism in medical physics: a survey of AAPM members.
Academic Article In defense of the American Academy of Pediatrics policy statement--children as hematopoietic stem cell donors.
Academic Article A pilot study to determine whether health care professionals perceive stigma in heterozygote carrier identification and disclosure decisions.
Academic Article Newborn screening for sickle cell disease: whose reproductive benefit?
Academic Article The participation of minorities in published pediatric research.
Academic Article Access and equity to cancer care in the USA: a review and assessment.
Academic Article Children as research subjects: a proposal to revise the current federal regulations using a moral framework.
Academic Article Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children.
Academic Article A K-nearest neighbors survival probability prediction method.
Academic Article Heterozygote carrier testing in high schools abroad: what are the lessons for the U.S.?
Academic Article Methodology matters.
Academic Article American academy of pediatrics policy statements on bioethics: summaries and commentaries: part 3.
Academic Article Ethical and policy lessons to be learned from a family with inherited bone marrow failure.
Academic Article Qualitative insights into how pediatric pay-for-performance programs are being designed.
Academic Article Mandatory versus voluntary consent for newborn screening?
Academic Article Newborn screening for lysosomal storage diseases: an ethical and policy analysis.
Academic Article Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.
Academic Article Do healthy children deserve greater protection in medical research?
Academic Article Minority children in pediatric research.
Academic Article Is kidney donation in the donor's best interest?
Academic Article Adolescent autonomy in health care?
Academic Article Convening a 407 panel for research not otherwise approvable: "Precursors to diabetes in Japanese American youth" as a case study.
Academic Article American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 1.
Academic Article Population screening for genetic disorders in the 21st century: evidence, economics, and ethics.
Academic Article An ethical and policy analysis of elective transplantation for metabolic conditions diagnosed by newborn screening.
Academic Article A pilot study to evaluate knowledge and attitudes of Illinois pediatricians toward newborn screening for sickle cell disease and cystic fibrosis.
Academic Article Attitudes of African-American parents about biobank participation and return of results for themselves and their children.
Academic Article Newborns and other children: in defense of differential attitudes and treatment.
Award or Honor Receipt Patricia Price Brown Prize in Biomedical Ethics
Academic Article The need to promote all pediatric stem cell donors' understanding and interests.
Academic Article Relational autonomy: moving beyond the limits of isolated individualism.
Academic Article Communicating with parents about immunization safety: messages for pediatricians in the IOM report "the childhood immunization schedule and safety: stakeholder concerns, scientific evidence, and future studies".
Academic Article Technical report: Ethical and policy issues in genetic testing and screening of children.
Academic Article The moral and legal need to disclose despite a certificate of confidentiality.
Academic Article Teaching and assessment of ethics and professionalism: a survey of pediatric program directors.
Academic Article Addressing the ethical challenges in genetic testing and sequencing of children.
Academic Article Predictive genetic testing of children and the role of the best interest standard.
Academic Article Recommendations for returning genomic incidental findings? We need to talk!
Academic Article Universal state newborn screening programs can reduce health disparities.
Academic Article Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children.
Academic Article Racial disparities in reaching the renal transplant waitlist: is geography as important as race?
Academic Article Ethical and policy issues in newborn screening of children for neurologic and developmental disorders.
Academic Article Disclosing Health and Health Behavior Information between Living Donors and Their Recipients.
Academic Article Age and equity in liver transplantation: An organ allocation model.
Academic Article To tell or not to tell: attitudes of transplant surgeons and transplant nephrologists regarding the disclosure of recipient information to living kidney donors.
Academic Article Theory and Practice of Pediatric Bioethics.
Academic Article The 1966 Ciba Symposium on Transplantation Ethics: 50 Years Later.
Academic Article Should Medical Errors Be Disclosed to Pediatric Patients? Pediatricians' Attitudes Toward Error Disclosure.
Academic Article Adding Another Voice to the Living Donor Kidney Transplant Discussions at the CIBA Symposium of 1966.
Academic Article 50 Years Ago in TheJournal ofPediatrics: Legislation and Advances in Medical Knowledge-Acceleration or Inhibition?
Academic Article 50 Years Ago in TheJournal ofPediatrics: Evaluation of the Effects of Terminating the Diet in Phenylketonuria.
Academic Article Kidney Donor Profile Index Does Not Accurately Predict the Graft Survival of Pediatric Deceased Donor Kidneys.
Academic Article 50 Years Ago in The Journal of Pediatrics: Conference on Treatment of Phenylketonuria.
Academic Article Attitudes of Lay Stakeholders and Transplant Professionals About Disclosure to Living Kidney Donors in Exchanges and Chains.
Academic Article Attitudes and Counseling Practices of Pediatricians Regarding Youth Sports Participation and Concussion Risks.
Academic Article 50 Years Ago in The Journal of Pediatrics: Variability in the Manifestations of Phenylketonuria/Transient Hyperphenylalaninemia.
Academic Article Public Attitudes and Knowledge About Youth Sports Participation and Concussion Risk in an Urban Area.
Academic Article The Complexities of Ascertaining Public Preferences for Newborn Screening Policies.
Academic Article The Role of Gender in Publication in The Journal of Pediatrics 2015-2016: Equal Reviews, Unequal Opportunities.
Academic Article Describing how children with life threatening complex chronic conditions die.
Academic Article Pediatric Decision Making Requires Both Guidance and Intervention Principles.
Academic Article 50 Years Ago in The Journal of Pediatrics: Editorial Comment: Therapeutic Orphans.
Academic Article It is time to revise the kidney allocation system to restore the pediatric advantage.
Academic Article The Best Interest Standard: Same Name but Different Roles in Pediatric Bioethics and Child Rights Frameworks.
Academic Article Protect NIH's DNA advisory committee.
Academic Article Impact of the kidney allocation system on young pediatric recipients.
Academic Article Missed Opportunities in the Preparticipation Physical Examination for High School Athletes.
Academic Article African-Americans with End Stage Renal Disease in the Early Years of Kidney Transplantation.
Academic Article 50 Years Ago in TheJournal ofPediatrics: Parents of the Mentally Retarded Child: Emotionally Overwhelmed or Informationally Deprived?
Academic Article Child maltreatment and modifying factors in Shanghai, China.
Academic Article In Further Defense of "Better than Best (Interest)".
Academic Article Better than Best (Interest Standard) in Pediatric Decision Making.
Academic Article Surrogate Decision Making for Children: Who Should Decide?
Academic Article Association of Transplant Center With Survival Benefit Among Adults Undergoing Heart Transplant in the United States.
Academic Article 50 Years Ago in TheJournal ofPediatrics: Why Patients Don't Follow Medical Advice: A Study of Children on Long-Term Antistreptococcal Prophylaxis.
Academic Article 50 Years Ago in TheJournalofPediatrics: Renal Homotransplantations in Children.
Academic Article Health Care Surrogacy Laws Do Not Adequately Address the Needs of Minors.
Academic Article 50 Years Ago in TheJournalofPediatrics: Shifting Attitudes toward the Disclosure of Serious Illness.
Academic Article Reopening Schools Safely: The Case for Collaboration, Constructive Disruption of Pre-Coronavirus 2019 Expectations, and Creative Solutions.
Academic Article Abusive Head Trauma and Parental Participation in Pediatric Decision Making.
Academic Article 50 Years Ago in The Journal of Pediatrics: Plus ça Change: Halfway Technologies in Pediatrics.
Academic Article Reopening K-12 Schools in the Era of Coronavirus Disease 2019: Review of State-Level Guidance Addressing Equity Concerns.
Academic Article Should We Mandate a COVID-19 Vaccine for Children?
Academic Article Why Most Bad Decisions About Vaccines Do Not Constitute Child Neglect.
Academic Article The Pediatrician's Moral Obligation to Counsel Directively Against Youth Tackle Football.
Academic Article The Ethical Limits of Children's Participation in Clinical Research.
Academic Article Reflections on Ethics and Advocacy in Child Health (REACH): Creating a Forum for Ethical Dialogue.
Academic Article Mandatory Coronavirus Disease 2019 Vaccine for Children?-Reply.
Academic Article Analyzing Trends in the Global Surge of Coronavirus Disease 2019 Pandemic Submissions to The Journal of Pediatrics.
Academic Article Ethics of Organ Transplantation in Persons with Intellectual Disability.
Academic Article "Medical Benefit" and Therapeutic Misconception: The Ethical Conundrum of Phase 1 Pediatric Oncology Research.
Academic Article Pediatric Intensivist and Pediatric Neurologist Perspectives and Practices on Death by Neurologic Criteria.
Academic Article 50 Years Ago in TheJournalofPediatrics: Attention-Deficit/Hyperactivity Disorder Contextualized.
Academic Article The case against COVID-19 vaccine mandates in pediatric solid organ transplantation.
Academic Article Race in the Reading: A Study of Problematic Uses of Race and Ethnicity in a Prominent Pediatrics Textbook.
Academic Article The Use of Race, Ethnicity, and Social Determinants of Health in Three Pediatrics Journals.
Academic Article An Ethical Analysis of Newborn Congenital Cytomegalovirus Screening.
Academic Article The Journal of Pediatrics Turns 90! A Perspective on Progress, Opportunities, and Challenges.
Academic Article 50 Years Ago in TheJournalofPediatrics: Public Health Redux.
Academic Article Is it Reasonable to Demand Reasons in Pediatric Decision-Making?
Academic Article Expounding on Shared Decision-Making in Pediatrics.
Academic Article International Pediatric Transplant Association (IPTA) position statement supporting prioritizing pediatric recipients for deceased donor organ allocation.
Concept Child Health
Concept Health Equity
Concept Social Determinants of Health
Grant Sibling Obligations in Health Care
Grant CHILDREN IN MEDICAL RESEARCH: ETHICAL&POLICY CHALLENGES
Grant Ethical Issues in Living Donor Transplantation
Academic Article How Race, Ethnicity, and Social Determinants of Health Are Reported in Three European Pediatric Journals.
Academic Article Refusals of the Determination of Death by Neurologic Criteria: A Mixed Methods Study of Physician Perspectives on Refusals Cases.
Academic Article Representation of Women in Published Articles at 3 Academic Pediatric Journals: 2001 to 2022.
Academic Article Newborn Screening for Neurodevelopmental Disorders May Exacerbate Health Disparities.
Academic Article Pediatric Decision Making: Consensus Recommendations.
Academic Article Against the Equality of Moral Spheres in Healthcare.
Academic Article The Philosophical Underpinning of the Family for Pediatric Decision-Making.
Academic Article Misleading Statements About Children as Living Organ Donors.
Academic Article Graft Survival of En Bloc Deceased Donor Kidneys Transplants Compared With Single Kidney Transplants.
Academic Article How We Found Consensus on Pediatric Decision-Making and Why It Matters.
Academic Article Medical Decision-Making for Children in Families with Siblings: parental discretion and its limits.
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