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One or more keywords matched the following properties of Msall, Michael E.
keywords Neurodevelopment, child disability, prematurity, cerebral palsy, intellectual disability ,enablement
overview For 34 years, I have been involved with understanding the complexity of child, adolescent, and adult neurodevelopmental disability and community outcomes of health, functioning, and participation. I bring expertise in qualitative and quantitative methods for modelling health status, resiliency and missed opportunities across childhood, adolescent and young adult life for individuals born prematurely. I have trained 54 postdoctoral fellows in their use of developmental and functional assessments, biomarkers, and clinical outcomes research, of which 95% have gone on to successful scientific and clinical-academic medical leadership positions. Throughout my career, I have asked the question how do individuals with prematurity at highest risk for early onset neurodevelopmental disabilities fare with respect to their long-term physical, developmental and social health outcomes? In my first U.S. academic job, I was responsible for neurodevelopmental consultative services linked to primary medical care and community care coordination (UCP, ARC, People’s Inc.) for individuals age birth to 90 years with CP and related neurodevelopmental disabilities. For these efforts, I received the Sir James Carreras International Variety Club Award. In my academic positions at Brown University and University of Chicago, I have continued to develop interdisciplinary regional management teams to promote functioning and participation for individuals with neurodevelopmental disabilities. With interdisciplinary colleagues, I developed a pediatric functional independence measure (WeeFIMTM) that has been used for 3-7 year outcomes in three NIH Multicenter Studies: Cryosurgery for Retinopathy of Prematurity (Pediatrics. 2000;106(5):998-1005. PMID: 11061766), Fetal Surgery for Myelomeningocele (Childs Nerv Syst. 2011 Jul;27(7):1083-8. PMID:21327591), and the CoolCap trial of cooling for neonatal encephalopathy (Guillet et al. Pediatr Res. 2012 Feb;71(2):205-9. PMID:22258133). More recently, I developed the Warner Initial Development Evaluation of Adaptive and Functional Skills (WIDEA-FS), which tracks emerging motor, communicative, and adaptive competencies in the first two years, and the Child Health Impairment-Functioning, Participation, and Participation (CHI-FPS) Checklist for children 7-18 years. These instruments were respectively normed on over 1500 neurotypical children and over 1500 children with disabilities. These tools were validated against specific standardized motor, communicative, developmental, psychological, and educational achievement tests. These indicators of challenges in daily activities and their impact on family life were subsequently implemented in community populations in New England, the International Rett Registry, the Western Australia Down Syndrome Registry, the U.S. and Australian Newborn Encephalopathy-Hypothermia and Erythropoietin Trials, and the Cerebral Palsy Research Registry. In all of these efforts, longitudinal strategies for tracking physical developmental and behavioral health outcomes, as well as functioning, participation and individual and family well-being occurred through interdisciplinary teams of health and rehabilitation professionals committed to enablement.
One or more keywords matched the following items that are connected to Msall, Michael E.
Item TypeName
Concept Psychology, Adolescent
Concept Adolescent
Concept Child Abuse
Concept Child Health Services
Concept Child
Concept Child Development Disorders, Pervasive
Concept Child Welfare
Concept Child Behavior Disorders
Concept Child Development
Concept Child, Preschool
Concept Mother-Child Relations
Concept Parent-Child Relations
Concept Child Nutrition Disorders
Concept Child of Impaired Parents
Concept Child Behavior
Academic Article Hypoxemia during oral feeding of children with severe cerebral palsy.
Academic Article Kindergarten readiness after extreme prematurity.
Academic Article Neuropsychological and functional outcomes of very low birth weight infants.
Academic Article The stability and equivalence reliability of the functional independence measure for children (WeeFIM).
Academic Article Television-viewing habits and sleep disturbance in school children.
Academic Article Measuring developmental and functional status in children with disabilities.
Academic Article Measuring functional status and family support in older school-aged children with cerebral palsy: comparison of three instruments.
Academic Article Functional limitations and key indicators of well-being in children with disability.
Academic Article Improved disability population estimates of functional limitation among American children aged 5-17.
Academic Article The vulnerable preschool child: the impact of biomedical and social risks on neurodevelopmental function.
Academic Article Genes, brains, and development: linking preschool developmental disorders to medical science and care.
Academic Article Functional status, medical impairments, and rehabilitation resources in 84 females with Rett syndrome: a snapshot across the world from the parental perspective.
Academic Article Growth of preterm infants with cystic periventricular leukomalacia.
Academic Article The WeeFIM instrument: its utility in detecting change in children with developmental disabilities.
Academic Article Functional assessment and care of children with neurodevelopmental disabilities.
Academic Article Functional outcomes in self-care, mobility, communication, and learning in extremely low-birth weight infants.
Academic Article Extreme prematurity and school outcomes.
Academic Article Parental and self-report of sleep in children with attention-deficit/hyperactivity disorder.
Academic Article Newborn screening compared to clinical identification of biochemical genetic disorders.
Academic Article Guidelines for safe transportation of children in wheelchairs.
Academic Article Severity of neonatal retinopathy of prematurity is predictive of neurodevelopmental functional outcome at age 5.5 years. Behalf of the Cryotherapy for Retinopathy of Prematurity Cooperative Group.
Academic Article Tools for measuring daily activities in children: promoting independence and developing a language for child disability.
Academic Article Functional status of school-aged children with Down syndrome.
Academic Article Functional disability and school activity limitations in 41,300 school-age children: relationship to medical impairments.
Academic Article Educational and social competencies at 8 years in children with threshold retinopathy of prematurity in the CRYO-ROP multicenter study.
Academic Article Describing the phenotype in Rett syndrome using a population database.
Academic Article Spectrum of gross motor function in extremely low birth weight children with cerebral palsy at 18 months of age.
Academic Article Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele.
Academic Article Development of a video-based evaluation tool in Rett syndrome.
Academic Article Effect of expanded newborn screening for biochemical genetic disorders on child outcomes and parental stress.
Academic Article Physical and mental health of mothers caring for a child with Rett syndrome.
Academic Article Neurodevelopmental surveillance in the first 2 years after extremely preterm birth: evidence, challenges, and guidelines.
Academic Article Counting children with disability in low-income countries: enhancing prevention, promoting child development, and investing in economic well-being.
Academic Article Acquired epileptic aphasia. Diagnostic aspects of progressive language loss in preschool children.
Academic Article Physical and mental health in mothers of children with Down syndrome.
Academic Article Neuroimaging and cerebral palsy in children.
Academic Article Central nervous system connectivity after extreme prematurity: understanding autistic spectrum disorder.
Academic Article The panorama of cerebral palsy after very and extremely preterm birth: evidence and challenges.
Academic Article Symptomatic atlantoaxial instability associated with medical and rehabilitative procedures in children with Down syndrome.
Academic Article Developing preschool surveillance tools for adaptive functioning: lessons for neuro-oncology.
Academic Article Optimizing early development and understanding trajectories of resiliency after extreme prematurity.
Academic Article Predicting school readiness from neurodevelopmental assessments at age 2 years after respiratory distress syndrome in infants born preterm.
Academic Article Concurrent validity of the parent-completed Ages and Stages Questionnaires, 2nd Ed. with the Bayley Scales of Infant Development II in a low-risk sample.
Academic Article Optimizing neuromotor outcomes among very preterm, very low-birth-weight infants.
Academic Article N-acetylator variability in Down's syndrome: characterization with caffeine.
Academic Article Functional performance of preterm children at age 4.
Academic Article Using population attributable risk to help target preventive interventions for adolescent depression.
Academic Article Safety and efficacy of inhaled nitric oxide treatment for premature infants with respiratory distress syndrome: follow-up evaluation at early school age.
Academic Article Overestimating neuroprotection in congenital heart disease: problems with Bayley III outcomes.
Academic Article A tool kit for measuring functioning in children with neurodisability: calibrating activities.
Academic Article Distressed neighborhoods and child disability rates: analyses of 157,000 school-age children.
Academic Article Establishing a translational science for autistic spectrum disorders for children and their families: optimizing function, participation, and well-being.
Academic Article The spectrum of behavioral outcomes after extreme prematurity: regulatory, attention, social, and adaptive dimensions.
Academic Article The cerebral palsy research registry: development and progress toward national collaboration in the United States.
Academic Article 17-year outcome of preterm infants with diverse neonatal morbidities: Part 1--Impact on physical, neurological, and psychological health status.
Academic Article Acquired cervical spine impairment in young adults with cerebral palsy.
Academic Article Predictors of mortality, morbidity, and disability in a cohort of infants < or = 28 weeks' gestation.
Academic Article Risk of serious illness in heterozygotes for ornithine transcarbamylase deficiency.
Academic Article Risk factors affecting school readiness in premature infants with respiratory distress syndrome.
Academic Article Measuring outcomes after extreme prematurity with the Bayley-III Scales of infant and toddler development: a cautionary tale from Australia.
Academic Article Genetic testing for autism spectrum disorders.
Academic Article WeeFIM. Normative sample of an instrument for tracking functional independence in children.
Academic Article Relationships between laterality of congenital upper limb reduction defects and school performance.
Academic Article Family needs and profiles for children with cerebral palsy: understanding supports in times of scarcity.
Academic Article The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.
Academic Article Cognitive development in children with inborn errors of urea synthesis.
Academic Article Family developmental risk factors among adolescents with disabilities and children of parents with disabilities.
Academic Article Characteristics of dysphagia in children with cerebral palsy.
Academic Article Silent aspiration prominent in children with dysphagia.
Academic Article Functional status of extremely preterm infants at kindergarten entry.
Academic Article Personalized medicine and the importance of measuring functioning and participation over time: lessons from achondroplasia.
Academic Article Helping parents of children with monogenetic disorders understand developmental trajectories: lessons from achondroplasia.
Academic Article 17-year outcome of preterm infants with diverse neonatal morbidities: part 2, impact on activities and participation.
Academic Article Child and adult disability in the 2000 Census: disability is a household affair.
Academic Article Interrater agreement and stability of the Functional Independence Measure for Children (WeeFIM): use in children with developmental disabilities.
Academic Article Multivariate risks among extremely premature infants.
Academic Article Measuring functional status in children with genetic impairments.
Academic Article Measuring functional outcomes after prematurity: developmental impact of very low birth weight and extremely low birth weight status on childhood disability.
Academic Article Multiple minor malformations as a marker for prenatal etiology of cerebral palsy.
Academic Article Supporting vulnerable preschool children: connecting the dots before kindergarten.
Academic Article Measuring functional skills in preschool children at risk for neurodevelopmental disabilities.
Academic Article Complexity of the cerebral palsy syndromes: toward a developmental neuroscience approach.
Academic Article Neurodevelopmental management strategies for children with cerebral palsy: optimizing function, promoting participation, and supporting families.
Academic Article Gross motor profile in rett syndrome as determined by video analysis.
Academic Article Developmental and functional outcomes in children with a positive newborn screen for Krabbe disease: a pilot study of a phone-based interview surveillance technique.
Academic Article Induction chemotherapy and conformal radiation therapy for very young children with nonmetastatic medulloblastoma: Children's Oncology Group study P9934.
Academic Article Visuomotor performance in KCNJ11-related neonatal diabetes is impaired in children with DEND-associated mutations and may be improved by early treatment with sulfonylureas.
Academic Article A university-based health maintenance organization for persons with developmental disabilities: an editorial.
Academic Article Neurologic outcome in children with inborn errors of urea synthesis. Outcome of urea-cycle enzymopathies.
Academic Article Long-term morbidity and management strategies of tracheal aspiration in adults with severe developmental disabilities.
Academic Article Kindergarten readiness after prematurity: Integrating health, development, and behavioral functioning to optimize educational outcomes of vulnerable children.
Academic Article Antecedents and correlates of visual field deficits in children born extremely preterm.
Academic Article Social-emotional delays at 2 years in extremely low gestational age survivors: correlates of impaired orientation/engagement and emotional regulation.
Academic Article Commentary on "Kindergarten classroom functioning of extremely preterm/extremely low birth weight children" or "Leaving no child behind: promoting educational success for preterm survivors".
Academic Article Promoting function and participation to improve living a life with cerebral palsy.
Academic Article Medically complex children and early intervention for comprehensive medical care at home.
Academic Article Victimization and restricted participation among young people with disabilities in the US child welfare system.
Academic Article Children with autism spectrum disorder and epilepsy.
Academic Article Prematurity and school readiness in a nationally representative sample of Australian children: does typically occurring preschool moderate the relationship?
Academic Article Impaired visual fixation at the age of 2 years in children born before the twenty-eighth week of gestation. Antecedents and correlates in the multicenter ELGAN study.
Academic Article Health, functioning, and participation of adolescents and adults with cerebral palsy: a review of outcomes research.
Academic Article Positive Parenting Practices, Health Disparities, and Developmental Progress.
Academic Article Victimization and depression among youth with disabilities in the US child welfare system.
Academic Article Functioning in children and adolescents with Down syndrome on a population level: scientific opportunities and community care.
Academic Article Medical Therapy for Inappropriate Sexual Behaviors in a Teen With Autism Spectrum Disorder.
Academic Article Patients with KCNJ11-related diabetes frequently have neuropsychological impairments compared with sibling controls.
Academic Article Disparities in adversity among children with autism spectrum disorder: a population-based study.
Academic Article Supporting Vulnerable Children after Life-Threatening Neonatal Illness: Opportunities for Improving Outcomes.
Academic Article Language Abilities as a Framework for Understanding Emerging Cognition and Social Competencies after Late, Moderate, and Very Preterm Birth.
Academic Article ADHD, learning difficulties and sleep disturbances associated with KCNJ11-related neonatal diabetes.
Academic Article Prolonged Hospital Discharge for Children with Technology Dependency: A Source of Health Care Disparities.
Academic Article Prematurity and cardiovascular risk at early adulthood.
Academic Article Cognitive Development and Quality of Life Associated With BPD in 10-Year-Olds Born Preterm.
Academic Article Disparities in Life Course Outcomes for Transition-Aged Youth with Disabilities.
Academic Article Delayed Diagnosis and Treatment Among Children with Autism Who Experience Adversity.
Academic Article Adverse Childhood Experiences Are Associated with Unmet Healthcare Needs among Children with Autism Spectrum Disorder.
Academic Article Health Disparities and Child Development After Prematurity.
Academic Article Neurocognitive function of 10-year-old multiples born less than 28 weeks of gestational age.
Academic Article Long-Term Functioning and Participation Across the Life Course for Preterm Neonatal Intensive Care Unit Graduates.
Academic Article Health Impact of Participation for Vulnerable Youth With Disabilities.
Academic Article Health Care Disparities Among Children with Special Health Care Needs.
Academic Article The Test of Infant Motor Performance at 3 months predicts language, cognitive, and motor outcomes in infants born preterm at 2 years of age.
Academic Article Ethical Implications for Providers Regarding Cannabis Use in Children With Autism Spectrum Disorders.
Academic Article Children with developmental disabilities experience higher levels of adversity.
Academic Article Promoting Parenting Supports and Engagement for Infants Born Preterm.
Grant Leadership Education in Neurodevelopmental Disabilities in Illinois
Academic Article Establishing community pathways for the early recognition of cerebral palsy: red flags, enablement, and family support.
Academic Article Neurodevelopmental Abnormalities in Children With In Utero Zika Virus Exposure Without Congenital Zika Syndrome.
Academic Article Late adolescent & young adult functioning and participation outcomes after prematurity.
Academic Article Concurrent validity of the Warner Initial Developmental Evaluation of Adaptive and Functional Skills and the Bayley Scales of Infant and Toddler Development, Third Edition.
Academic Article Validity of The Warner Initial Developmental Evaluation of Adaptive and Functional Skills (WIDEA-FS): a daily activity criterion checklist for infants and toddlers.
Academic Article Adults with Cerebral Palsy Require Ongoing Neurologic Care: A Systematic Review.
Academic Article Protocol for implementation of an evidence based parentally administered intervention for preterm infants.
Academic Article Addressing disparities among children with cerebral palsy: Optimizing enablement, functioning, and participation.
Academic Article The effect of adverse childhood experiences on individuals with neurodisabilities.
Academic Article Bacteroidota and Lachnospiraceae integration into the gut microbiome at key time points in early life are linked to infant neurodevelopment.
Academic Article Harnessing the power of telemedicine to accomplish international pediatric outcome research during the COVID-19 pandemic.
Academic Article Psychiatric Outcomes, Functioning, and Participation in Extremely Low Gestational Age Newborns at Age 15 Years.
Academic Article Scaffolding Parenting and Health Development for Preterm Flourishing Across the Life Course.
Academic Article Defining A High-Quality Transition for Youth With Intellectual and Developmental Disabilities.
Academic Article Long-Term Outcome of Necrotizing Enterocolitis and Spontaneous Intestinal Perforation.
Academic Article Analysis of Neurodevelopment in Children Born Extremely Preterm Treated With Acid Suppressants Before Age 2 Years.
Academic Article Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home.
Concept Child Protective Services
Concept Child Health
Academic Article Perinatal Factors and Emotional, Cognitive, and Behavioral Dysregulation in Childhood and Adolescence.
Academic Article BEhavioral Health Stratified Treatment (B.E.S.T.) to optimize transition to adulthood for youth with intellectual and/or developmental disabilities.
Academic Article Autism and neurodevelopmental disability risks in children with tracheostomies and ventilators.
Academic Article Cerebral Palsy and Motor Impairment After Extreme Prematurity: Prediction of Diagnoses at Ages 2 and 10 Years.
Academic Article Health-related quality of life at age 10 years in children born extremely preterm.
Academic Article Optimizing trajectories of social adaptive competencies after extreme prematurity during the first 1000 days.
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