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Search Results to Michael E. Msall

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overview For 34 years, I have been involved with understanding the complexity of child, adolescent, and adult neurodevelopmental disability and community outcomes of health, functioning, and participation. I bring expertise in qualitative and quantitative methods for modelling health status, resiliency and missed opportunities across childhood, adolescent and young adult life for individuals born prematurely. I have trained 54 postdoctoral fellows in their use of developmental and functional assessments, biomarkers, and clinical outcomes research, of which 95% have gone on to successful scientific and clinical-academic medical leadership positions. Throughout my career, I have asked the question how do individuals with prematurity at highest risk for early onset neurodevelopmental disabilities fare with respect to their long-term physical, developmental and social health outcomes? In my first U.S. academic job, I was responsible for neurodevelopmental consultative services linked to primary medical care and community care coordination (UCP, ARC, People’s Inc.) for individuals age birth to 90 years with CP and related neurodevelopmental disabilities. For these efforts, I received the Sir James Carreras International Variety Club Award. In my academic positions at Brown University and University of Chicago, I have continued to develop interdisciplinary regional management teams to promote functioning and participation for individuals with neurodevelopmental disabilities. With interdisciplinary colleagues, I developed a pediatric functional independence measure (WeeFIMTM) that has been used for 3-7 year outcomes in three NIH Multicenter Studies: Cryosurgery for Retinopathy of Prematurity (Pediatrics. 2000;106(5):998-1005. PMID: 11061766), Fetal Surgery for Myelomeningocele (Childs Nerv Syst. 2011 Jul;27(7):1083-8. PMID:21327591), and the CoolCap trial of cooling for neonatal encephalopathy (Guillet et al. Pediatr Res. 2012 Feb;71(2):205-9. PMID:22258133). More recently, I developed the Warner Initial Development Evaluation of Adaptive and Functional Skills (WIDEA-FS), which tracks emerging motor, communicative, and adaptive competencies in the first two years, and the Child Health Impairment-Functioning, Participation, and Participation (CHI-FPS) Checklist for children 7-18 years. These instruments were respectively normed on over 1500 neurotypical children and over 1500 children with disabilities. These tools were validated against specific standardized motor, communicative, developmental, psychological, and educational achievement tests. These indicators of challenges in daily activities and their impact on family life were subsequently implemented in community populations in New England, the International Rett Registry, the Western Australia Down Syndrome Registry, the U.S. and Australian Newborn Encephalopathy-Hypothermia and Erythropoietin Trials, and the Cerebral Palsy Research Registry. In all of these efforts, longitudinal strategies for tracking physical developmental and behavioral health outcomes, as well as functioning, participation and individual and family well-being occurred through interdisciplinary teams of health and rehabilitation professionals committed to enablement.

One or more keywords matched the following items that are connected to Msall, Michael E.

Item TypeName
Concept Child Health Services
Concept Attitude of Health Personnel
Concept Attitude to Health
Concept Comprehensive Health Care
Concept Health Surveys
Concept Delivery of Health Care
Concept Health Services Needs and Demand
Concept Health Education
Concept Health Services
Concept Health Services Accessibility
Concept Health Maintenance Organizations
Concept Health Policy
Concept Health Promotion
Concept Health Status Indicators
Concept Women's Health
Concept Health Behavior
Concept Mental Health
Concept Allied Health Occupations
Concept Health Status Disparities
Concept Health Care Surveys
Concept Healthcare Disparities
Concept Family Health
Concept Health Personnel
Concept Health Status
Concept Preventive Health Services
Concept World Health Organization
Academic Article Measuring developmental and functional status in children with disabilities.
Academic Article Measuring functional status and family support in older school-aged children with cerebral palsy: comparison of three instruments.
Academic Article Functional limitations and key indicators of well-being in children with disability.
Academic Article Improved disability population estimates of functional limitation among American children aged 5-17.
Academic Article Functional status, medical impairments, and rehabilitation resources in 84 females with Rett syndrome: a snapshot across the world from the parental perspective.
Academic Article Newborn screening: an overview with an update on recent advances.
Academic Article Newborn screening compared to clinical identification of biochemical genetic disorders.
Academic Article Severity of neonatal retinopathy of prematurity is predictive of neurodevelopmental functional outcome at age 5.5 years. Behalf of the Cryotherapy for Retinopathy of Prematurity Cooperative Group.
Academic Article Tools for measuring daily activities in children: promoting independence and developing a language for child disability.
Academic Article Maternal fish consumption and infant birth size and gestation: New York State Angler Cohort Study.
Academic Article Functional status of school-aged children with Down syndrome.
Academic Article Functional disability and school activity limitations in 41,300 school-age children: relationship to medical impairments.
Academic Article Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele.
Academic Article Effect of expanded newborn screening for biochemical genetic disorders on child outcomes and parental stress.
Academic Article Physical and mental health of mothers caring for a child with Rett syndrome.
Academic Article Counting children with disability in low-income countries: enhancing prevention, promoting child development, and investing in economic well-being.
Academic Article Physical and mental health in mothers of children with Down syndrome.
Academic Article Concurrent validity of the parent-completed Ages and Stages Questionnaires, 2nd Ed. with the Bayley Scales of Infant Development II in a low-risk sample.
Academic Article Functional performance of preterm children at age 4.
Academic Article Using population attributable risk to help target preventive interventions for adolescent depression.
Academic Article Establishing a translational science for autistic spectrum disorders for children and their families: optimizing function, participation, and well-being.
Academic Article 17-year outcome of preterm infants with diverse neonatal morbidities: Part 1--Impact on physical, neurological, and psychological health status.
Academic Article Measuring outcomes after extreme prematurity with the Bayley-III Scales of infant and toddler development: a cautionary tale from Australia.
Academic Article Family needs and profiles for children with cerebral palsy: understanding supports in times of scarcity.
Academic Article Family developmental risk factors among adolescents with disabilities and children of parents with disabilities.
Academic Article 17-year outcome of preterm infants with diverse neonatal morbidities: part 2, impact on activities and participation.
Academic Article Child and adult disability in the 2000 Census: disability is a household affair.
Academic Article Interrater agreement and stability of the Functional Independence Measure for Children (WeeFIM): use in children with developmental disabilities.
Academic Article Measuring functional skills in preschool children at risk for neurodevelopmental disabilities.
Academic Article A university-based health maintenance organization for persons with developmental disabilities: an editorial.
Academic Article Pediatricians' knowledge, attitudes, and practice patterns regarding special education and individualized education programs.
Academic Article Kindergarten readiness after prematurity: Integrating health, development, and behavioral functioning to optimize educational outcomes of vulnerable children.
Academic Article Medically complex children and early intervention for comprehensive medical care at home.
Academic Article Health, functioning, and participation of adolescents and adults with cerebral palsy: a review of outcomes research.
Academic Article Positive Parenting Practices, Health Disparities, and Developmental Progress.
Academic Article Victimization and depression among youth with disabilities in the US child welfare system.
Academic Article Disparities in adversity among children with autism spectrum disorder: a population-based study.
Academic Article Prolonged Hospital Discharge for Children with Technology Dependency: A Source of Health Care Disparities.
Academic Article Prematurity and cardiovascular risk at early adulthood.
Academic Article Disparities in Life Course Outcomes for Transition-Aged Youth with Disabilities.
Academic Article Delayed Diagnosis and Treatment Among Children with Autism Who Experience Adversity.
Academic Article Adverse Childhood Experiences Are Associated with Unmet Healthcare Needs among Children with Autism Spectrum Disorder.
Academic Article Health Disparities and Child Development After Prematurity.
Academic Article Long-Term Functioning and Participation Across the Life Course for Preterm Neonatal Intensive Care Unit Graduates.
Academic Article Health Impact of Participation for Vulnerable Youth With Disabilities.
Academic Article Health Care Disparities Among Children with Special Health Care Needs.
Academic Article Ethical Implications for Providers Regarding Cannabis Use in Children With Autism Spectrum Disorders.
Academic Article Children with developmental disabilities experience higher levels of adversity.
Award or Honor Receipt March of Dimes Jonas Salk Health Leadership Award for Research
Award or Honor Receipt Rhode Island Health Certificate of Recognition for Children with Special Health Care Needs
Award or Honor Receipt Developmental Disabilities Planning Council of Western NY Community Service Award for health equity
Grant Leadership Education in Neurodevelopmental Disabilities in Illinois
Academic Article Establishing community pathways for the early recognition of cerebral palsy: red flags, enablement, and family support.
Academic Article Late adolescent & young adult functioning and participation outcomes after prematurity.
Academic Article Protocol for implementation of an evidence based parentally administered intervention for preterm infants.
Academic Article Addressing disparities among children with cerebral palsy: Optimizing enablement, functioning, and participation.
Academic Article Successfully Negotiating Life Challenges: Learnings From Adults With Cerebral Palsy.
Academic Article Scaffolding Parenting and Health Development for Preterm Flourishing Across the Life Course.

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