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One or more keywords matched the following properties of Msall, Michael E.
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overview For 34 years, I have been involved with understanding the complexity of child, adolescent, and adult neurodevelopmental disability and community outcomes of health, functioning, and participation. I bring expertise in qualitative and quantitative methods for modelling health status, resiliency and missed opportunities across childhood, adolescent and young adult life for individuals born prematurely. I have trained 54 postdoctoral fellows in their use of developmental and functional assessments, biomarkers, and clinical outcomes research, of which 95% have gone on to successful scientific and clinical-academic medical leadership positions. Throughout my career, I have asked the question how do individuals with prematurity at highest risk for early onset neurodevelopmental disabilities fare with respect to their long-term physical, developmental and social health outcomes? In my first U.S. academic job, I was responsible for neurodevelopmental consultative services linked to primary medical care and community care coordination (UCP, ARC, People’s Inc.) for individuals age birth to 90 years with CP and related neurodevelopmental disabilities. For these efforts, I received the Sir James Carreras International Variety Club Award. In my academic positions at Brown University and University of Chicago, I have continued to develop interdisciplinary regional management teams to promote functioning and participation for individuals with neurodevelopmental disabilities. With interdisciplinary colleagues, I developed a pediatric functional independence measure (WeeFIMTM) that has been used for 3-7 year outcomes in three NIH Multicenter Studies: Cryosurgery for Retinopathy of Prematurity (Pediatrics. 2000;106(5):998-1005. PMID: 11061766), Fetal Surgery for Myelomeningocele (Childs Nerv Syst. 2011 Jul;27(7):1083-8. PMID:21327591), and the CoolCap trial of cooling for neonatal encephalopathy (Guillet et al. Pediatr Res. 2012 Feb;71(2):205-9. PMID:22258133). More recently, I developed the Warner Initial Development Evaluation of Adaptive and Functional Skills (WIDEA-FS), which tracks emerging motor, communicative, and adaptive competencies in the first two years, and the Child Health Impairment-Functioning, Participation, and Participation (CHI-FPS) Checklist for children 7-18 years. These instruments were respectively normed on over 1500 neurotypical children and over 1500 children with disabilities. These tools were validated against specific standardized motor, communicative, developmental, psychological, and educational achievement tests. These indicators of challenges in daily activities and their impact on family life were subsequently implemented in community populations in New England, the International Rett Registry, the Western Australia Down Syndrome Registry, the U.S. and Australian Newborn Encephalopathy-Hypothermia and Erythropoietin Trials, and the Cerebral Palsy Research Registry. In all of these efforts, longitudinal strategies for tracking physical developmental and behavioral health outcomes, as well as functioning, participation and individual and family well-being occurred through interdisciplinary teams of health and rehabilitation professionals committed to enablement.
One or more keywords matched the following items that are connected to Msall, Michael E.
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Concept Disabled Children
Academic Article Measuring developmental and functional status in children with disabilities.
Academic Article Functional limitations and key indicators of well-being in children with disability.
Academic Article Improved disability population estimates of functional limitation among American children aged 5-17.
Academic Article Extreme prematurity and school outcomes.
Academic Article Functional status of school-aged children with Down syndrome.
Academic Article Functional disability and school activity limitations in 41,300 school-age children: relationship to medical impairments.
Academic Article Physical and mental health of mothers caring for a child with Rett syndrome.
Academic Article Neurodevelopmental surveillance in the first 2 years after extremely preterm birth: evidence, challenges, and guidelines.
Academic Article Measuring developmental and functional status in children with disabilities.
Academic Article Counting children with disability in low-income countries: enhancing prevention, promoting child development, and investing in economic well-being.
Academic Article The panorama of cerebral palsy after very and extremely preterm birth: evidence and challenges.
Academic Article A tool kit for measuring functioning in children with neurodisability: calibrating activities.
Academic Article Distressed neighborhoods and child disability rates: analyses of 157,000 school-age children.
Academic Article The cerebral palsy research registry: development and progress toward national collaboration in the United States.
Academic Article Family needs and profiles for children with cerebral palsy: understanding supports in times of scarcity.
Academic Article Family developmental risk factors among adolescents with disabilities and children of parents with disabilities.
Academic Article Measuring functional status in children with genetic impairments.
Academic Article Medically complex children and early intervention for comprehensive medical care at home.
Academic Article Victimization and restricted participation among young people with disabilities in the US child welfare system.
Academic Article Victimization and depression among youth with disabilities in the US child welfare system.
Academic Article Adverse Childhood Experiences Are Associated with Unmet Healthcare Needs among Children with Autism Spectrum Disorder.
Academic Article Health Disparities and Child Development After Prematurity.
Academic Article Health Impact of Participation for Vulnerable Youth With Disabilities.
Academic Article Health Care Disparities Among Children with Special Health Care Needs.
Academic Article Social Determinants in COVID-19 Experiences of Children With Disabilities Receiving School-Based Services in Chicago: Mixed-Methods Study of Parent/Guardian Perspectives.
Academic Article Social Determinants in COVID-19 Experiences of Children With Disabilities Receiving School-Based Services in Chicago: Mixed-Methods Study of Parent/Guardian Perspectives.
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  • Disabled Children